I have decided that I need to go back to blogging to relieve some of the stress of living in a world of a diabetic. I continue to learn.... first of all I want to say that I"m excited about all the news that is coming from Dr. Faustman. I continue to support her work fully and have ceased to support the ADA and the JDRF. I truly beleive that Dr. Faustman's heart is in the right place. Lee Iacocca Foundation continues to support her research and work. Just the fact that she struggles with funding for her work.. tells me right there.. she is on to something that maybe "those in it for the money" are not!
Anyway.. enough of that band wagon. I need to vent about A1C's... after a rough month with Hannah... I'll try to keep this short. After 6 years of never having a problem with Hannah.. on March 17th.. her sister woke at 6am to find her having a seizure in her bed. Racing down the steps to get me.. I had been up for about 10 minutes and was doing laundry.. my husband called 911 as I pulled Hannah up and tried to get some juice under her tongue. I then tried table sugar. Michala handed me her glucogen (not knowing she didn't mix it.. my fault for not showing my family how to use the thing)... jammed that into her thigh. Her eyes popped open. (found out later that the table sugar must have did the trick). After the rescue unit left, Hannah developed a severe head ache and started vomiting (from the extreme changes in her bs levels). Ended up taking her to ER to calm both her head and stomach. To make a long story short.. for the next two-three weeks.. we struggled with a drop in her insulin need. We were constantly making changes in her pump and her bolus numbers. You would think a 14 year old, if going thru puberty (if she is) would require more insulin. No one seems to know what is going on with her.
Hannah is not like your typical 14 year old. She is totally "in tune" to her own care and takes very good care of herself. She has learned everything from Day 1 what I have. She has heard what I have.. I don't hide anything from her.. I make the dr's talk to her and I teach her everything I understand and know. Hannah has been totally in control of her diabetes and her care for about 6-8 months. Her blood work and a1c's have been wonderful.
I was asked the other day by my family dr. (not an endo..) what my goal was with Hannah (after sharing our seizure story with him). I said to have her maintain steady bs so she isn't having big swings in them .. so she stays healthy. He asked me point blank.."but what are you sacrificing maintaining that "great" A1C?".How many lows is she having trying to keep tight control? I honestly couldn't tell him. He then asked me what would be so bad about having a target range of lets say 120-160 instead of 70-120? As long as you are still meeting your same goal? No swings. I'm like looking at him dumbfounded. That makes a lot of sense!!! Less stress, same results... screw the "6" a1c!
Works for me!!! More to write... Hannah went on an outdoor education trip (first time since diagnosed... overnight some where with no one checking her bs).... but her.